In this episode we are joined by Dr. Hsien Seow, Canada Research Chair in Palliative Care and Health System Innovation at McMaster University and Director of the ICES-McMaster site, and Dr. Samantha Winemaker, community-based Palliative Care Doctor, Co-founder and co-host of Waiting Room Revolution Podcast and recipient of the 2018 Elizabeth J. Latimer Prize in Palliative Care. Healthcare providers, this one is for you! In this episode we explore the value of engaging patients and families to learn about their illness and how it can empower them. From waitingroomrevolution.com Hsien and Sammy have worked their careers helping those who are facing serious illness. For years, they often heard patients and families say they felt unprepared and overwhelmed. Despite years of education, research, and advocacy, they continued to hear patients and families say “Why didn’t anyone tell me that sooner…” They started the Waiting Room Revolution movement because they wanted to improve the patient and family illness experience. They want to build a community to share deeply human stories about caring for others. Through interviews with experts, clinicians, patients and caregivers, they are harnessing the advice of those with lived experience to better prepare those who are just starting their caring journey. They cannot do it alone. Individuals, families and communities have to be empowered as the catalyst for change. They believe we have so much to learn from one another. Together, we can move from being “in the dark” to being “in the know.”
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